I have been diagnosed with Epilepsy, but all my tests have been clear.
Tests with normal results do not mean you dont have Epilepsy. In fact, for many of the tests, it is good they came back
normal. An EEG will only show abnormal electical activity in your brain if you have a seizure during the actual time of the
test. If your brain scan has come back clear, congratulate! This means that there is no serious cause for your Epilepsy. As
mentioned in other column, Epilepsy is mainly diagnosed through witness account.
I have just been diagnosed with Epilepsy, I need to know what I can and cant do.
Sometimes the best way to find the answer to this question is to look at your active life now. It is important you think
carefully about the things you do, or want to do and the risks that they may cause. Cycling and swimming come with great risks
for people with Epilepsy (Any person can drown in less than 3 inches of water) During a seizure, you would be unable to personally,
get yourself to saftey.
Situations where you know you may hurt or injure yourself, are best avoided; and it is always a safter to opt to take
a shower, rather than a bath.
Nightclubs and concerts are a danger to people with Epilepsy, those who are photosenstitive, more so. Certain movies
and computer games can also trigger seizures in someone who has Epilepsy.
Can I still drink alcohol?
The occasional drink will not affect someone with Epilepsy a great deal. However, regular drinking, or drinking large
amounts of alcohol may trigger seizures, as might the hangover the next day.
Alcohol, like with any drug, is not always compatible with your AED's (Anti Epilepsy Drugs), it is important you read
the leaflets given to you with your medications, before deciding to pick up the vodka bottle!
I am experiencing side effects with my medication.
See your doctor! Your doctor is more than likely, to have prescribed you the drug that they know or feel will have least
side effects, however, people react to drugs in different ways. Some people will need to try a few drugs and find out which
one works best for them. It's sometimes a case of trial and error. Though, it is important to remember, you may experience
some side effect to ANY drug, providing your side effects are minimal, a drug change may not be advised by your doctor. Doctors
generally prescribe a drug and slowly increase your dosage as to minimise the risk of your side effects being too harsh and
it is normal to experience slight changes in your body during the increase - But only until you find the right drug/dose.
If you are uncomfortable or worried, make an appointment to see your doctor.
My child/partner has experienced behavioural or personality changes since s/he has been diagnosed with Epilepsy.
Why is this?
Maybe one of the hardest questions to answer because there are a number of reasons to why this might be happening. Changes
in lifestyle are often a major cause for different behaviour in anyone who has been diagnosed with Epilepsy, and sometimes
the diagnosis itself is enough to upset someone. It is important to ensure that the person in question is getting the best
support network available from those involved in his/hers life. It can have serious impact on someone if they feel they are
alone. Medication is also sometimes a cause for change in behaviour and personality. They can make people feel unwell, irritable
and sometimes cause mild depression. Talking is essential to people who have been affected by Epilepsy, both those with it
and without it.
If you have any questions that aren't mentioned here, please feel free to email me. (Use the contact
page to find out how you can reach me). I will reply to every message I recieve.